They must be enrolled full time sophomores or juniors at the time of application. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, disability, or . #RAREis Scholarship Fund The program is currently closed. The information in this site does not constitute legal advice. Now, thanks to the #Rareis scholarship fund, we can help patients not just to live with their disease, but to thrive.. Scholarships awarded to two students with cystic fibrosis who are pursuing a career in the fine arts, graphics, music, singing, photography, filmmaking, writing, poetry, dance, theater, and other performance arts. $3000 scholarships to students of color with autism pursuing a post-secondary, undergraduate education or vocational-technical training at a 2- or 4-year college; trade, technical or vocational school; or a cooperative life skills program. The fund is open to individuals who have been diagnosed with a rare disease. Program provides scholarships for college students with a major limb amputation, who will be attending an accredited university as a full time student. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Browse by Disease. Provides merit-based scholarships to students who are deaf or hard-of-hearing. . A scholarship for students currently attending a technical program, community college, university, or certification program and have been diagnosed with lupus. Program provides a scholarship award to a graduating high school senior with a documented learning disability (LD) and/or ADHD who will be enrolled in a full-time bachelors degree program in the fall. Scholarships are awarded biennially to legally blind selected applicants studying for a career in the field of services to children or adults who are blind or visually impaired. In the U.S., this means a disease that affects fewer than 200,000 residents at any given time. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). A scholarship for college students that are diagnosed with lupus. Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. Parent, Family Member, Loved One With Cancer, Brain Cancer/Tumors. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. Program provides scholarships and educational counseling to children of military personnel who have lost a parent in the line of duty. This scholarship is for young women pursuing a STEM major. Program awards scholarships to men with hemophilia or von Willebrand disease, or to their immediate family members. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. Texas Associated Press Broadcasters Scholarship Recipient, 2019-2020 - . Veterans - Disability/Injured-Families, Victims of 9/11 and/or family member. 2020. Children with a parent wounded, disabled or killed in military service, Military related, Disabled - Veteran. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. Scholarships awarded to individuals who have been affected by HIV/AIDS, either by their own diagnosis or that of an immediate family member. Program awards a scholarship to studentswith diabetes pursuing higher education. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Provides a scholarship to students in the bleeding disorders community pursuing a degree in medical/healthcare services field. Advocating for Patient-Centered, Data-Driven Policy NORD helps drive more effective government policies by elevating the voice of the rare disease community. Awardees will be notified in October. Awards $3500 college scholarships to childhood cancer survivors, under the age of 25. Program provides a scholarship award to a student diagnosed with down syndrome seeking higher education or post-secondary classes. Research & Scholarship Overview; Patient Care Research. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Go here to apply. National - (Preference will be given to MO and IL applicants). Military related, Paralysis, Military wounded, Paralysis due to Spinal Cord and/or Brain Injury. Educational scholarships awarded to individuals who have been affected by cancer, either by their own diagnosis or that of a loved one. Kidney Disease, Kidney Transplant, Urologic Disease. This site is strictly a news and information website about the disease. Programs offers scholarship grants to children whose parent has been seriously or fatally injured in a work-related accident. Cancers, Cancer - All in a loved one, Childhood Cancer. Program offers scholarships to students living with Type 1 diabetes. $2,500 Educational scholarship for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Disability Requiring Assistive Technology, Mobility Disability, Kellys Angels aims to restore fun and laughter to the lives of children who have lost a parent, primary caregiver or sibling to cancer, by providing grants for the activity of the childs choosing, Cancer - All in a loved one, Parent, Family Member, Loved One With Cancer, Terminal Illnesses. An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community-including children, siblings, caregivers/care partners and those who are grieving. Program offers scholarships to individuals with disabilities pursuing higher education. $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. Program awards multiple scholarships to undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. An educational scholarship for students with a diagnosed mental illness. Go here to apply. Scholarship is for United States students who are for impacted by a hystiocytic disorder. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. This scholarship is for students pursuing a STEM major. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Program provides financial assistance of up to $500 to attend specialty camps for children affected by chronic illnesses. Scholarships are awarded to spouses, dependent children and grandchildren of blinded veterans or an Active Duty member of the U.S. Armed Forces to assist them with higher education tuition. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. Child with a parent or sibling who has or had cancer. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Scholarships awarded annually to one male and one female athlete. March 15, 2023 - Scholarship Application Window Opens. Individuals may apply for the 2020#RAREisScholarship Fund throughRareScholarship.org. $3000 scholarships to students with autism enrolled in or attending a two- or four-year undergraduate college. An educational scholarship for undergraduate students attending college/university in the US/Canada with dyslexia and/or auditory processing order. An educational scholarship for students attending a California college/university with a learning disability. Cystic Fibrosis, Chronic, Serious or Life Threatening Illnesses. However, we can't guarantee the accuracy or completeness of the information. Blood Disorders, Cystic Fibrosis, Autism, Hemophilia, Diabetes, Cerebral Palsy, Asperger Syndrome, Dyslexia, Childhood Diseases - Chronic, Attention Disorders, Crohn's Disease, Legg Perthe Disease, Central Auditory Processing Disorder, Bleeding/Clotting Disorders, Lupus, Inflammatory Bowel Disease, Lyme Disease. Financial assistance grants for people under 21 without medical insurance to put towards diagnosis and treatment. RAREis and the HORIZON logo are trademarks owned by or licensed to Horizon. This list includes both the main, and any alternate names for each disease. A scholarship for children of service members who died or became critically injured in the line of duty sine 9/11. Deafness, Hearing Loss, Hearing or Ear Conditions. Deafness, Hearing Loss, Child with a sibling or parent with a disability. A wish grant of 2,000 dollars maximum provides cancer patients between the ages of 18-39, something positive to focus on while they are currently receiving active treatment. Program awards scholarships to individuals who have been diagnosed with cancer, or a critical/life threatening disease/illness and are pursuing their higher education. Patient Worthy (Podcast) - Discussing Diagnosis and Access With the EveryLife Foundation for Rare Diseases - July 17, 2020 The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. Program awards scholarships for students with disabilities pursuing further education in computer Science or related field. Program provides competitive internships to students with apparent and non-apparent disabilities studying science, engineering, mathematics, computer science and some fields of business. Program provides financial assistance toward higher education for exceptional students living with cystic fibrosis. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. The EveryLife Foundation will manage the scholarship application process, selection process and distribution of funds independent of Horizon input. Program provides scholarships to high school and college students who have a demonstrated learning disability of dyslexia, and who wish to pursue a career in science, technology, engineering and math (STEM). Program provides financial assistance to help students affected by behavioral health issues move forward in their education. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Gastrointestinal Disorders, Cancers, Chronic, Serious or Life Threatening Illnesses. CHASA awards athletic scholarships to young athletes who have had hemiplegia since childhood to cover expenses for specific athletic competitions. "We all have diagnoses, and we all have disabilities and abilities," said Stephanie DeLuca, an . Foundation for Rare Diseases. A 22 Blindness in family member, Military wounded, Children with a parent wounded, disabled or killed in military service, A scholarships is awarded to a spouse, dependent child or grandchild of a blinded veteran or an Active Duty member of the. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder who intends to further his or her education at a college, junior college or vocational/trade school. Educational scholarship awards of $2,500 to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to further higher education. An educational scholarship for disabled military veterans enrolled at Texas A&M University. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia. $5,000 scholarship to high-achieving students who are disabled and enrolled in a accredited college or high school. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. Learning Disability, Dyslexia, ADHD, Autism. Scholarship awarded to an outstanding undergraduate student who is being treated for a diagnosed mental health condition. An educational scholarship for students at University of Wisconsin Madison that have a disability. Sort by: Name **Filter Feature In Development** Program provides a scholarship of up to $500 to students diagnosed with cystic fibrosis. Preference is given to students with a documented serious medical disability. Childhood Cancer, Cancers, Child with a parent or sibling who has or had cancer, Cancer - All in a loved one. Diseases requiring enteral or parenteral care, Gastrointestinal Disorders. Disability - Mobility, Mobility Disability, Disability Requiring Assistive Technology, Special Needs, Wheelchair Bound, Paralysis, Paralysis due to Spinal Cord and/or Brain Injury, Paraplegia. Program provides scholarships to high school seniors diagnosed with hemophilia A or B. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Scholarships open to any college-age young person with PKU who is on diet treatment, pursuing an undergraduate studies. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Childhood Cancer, Child with a parent or sibling who has or had cancer. Email: [emailprotected] Provides academic scholarships to assist students diagnosed with Cystic Fibrosis pursuing undergraduate or graduate degrees. #RAREis Scholarship Fund Apply before: 04/22/2022 # of Awards: 53 Amount: $5,000 Medexus B More Scholarship Program Apply before: 04/28/2022 # of Awards: 20 Amount: THE INFUCARE RX HEMOPHILIA AND BLEEDING DISORDERS SCHOLARSHIP Apply before: 05/01/2022 # of Awards: 1 Amount: Lawrence Madeiros Scholarship Apply before: 05/01/2022 # of Awards: 7 Program awards scholarships to students who are legally blind pursuing higher education. Lyme Disease, Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Rheumatoid Arthritis, Multiple Sclerosis, Hepatitis C, Crohn's Disease. Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. Please return then to view the updated Eligibility and Awards for the upcoming academic year! Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Awardees will be notified in October. Burn Injury, Deceased Loved One, First Responders - Disabled/Injured/Deceased. Program awards a scholarship to individuals relying on HPN, HEN, or HPEN for their primary nutritional needs, to further their educational goals. Program awards a scholarships to men with hemophilia pursuing higher education. webmaster. Website: bionews.com Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study. Program offers scholarship to an individual with Down syndrome pursuing their dream of entrepreneurship. Awards two to three individuals with neurological disabilities, or the child of that person, for post high school education yearly (once a year). Scholarships awarded to talented LGBTQ Engineering students in STEM fields pursuing degrees in science, technology, engineering, or mathematics programs. A one time $1,500 dollars scholarship to one outstanding female college student pursuing a STEM degree and who is in active-duty military. Awards a scholarship to students who are manual or power wheelchair users for pursuing higher education. College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. Spinal Cord Disorders, Spinal Cord Injuries. Program awards a scholarship to a student diagnosed with down syndrome seeking higher education or post-secondary classes. Program provides educational scholarships to disabled adults pursuing a career or vocation in any artistic field. Pensacola, FL 32502 The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . An education scholarship for active duty or honorably discharged U.S. veterans. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. Program offers a scholarship to a student diagnosed with cancer. Communication Disorders, Speech Impairment. For link problems or other technical problems, send an email to
Program awards scholarships to transplant candidates, recipients, donors, and their immediate family members each year. Awards scholarships to students diagnosed with Hemophilia, Von Willebrand disease or other bleeding disorder. Awards will be provided to 32 recipients for the Spring 2021 semester. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Scholarships for a current paid member of TSSUS to attend the 3-day National Turner Syndrome Conference held each summer in different cities across the United States. $2,500 scholarship awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to assist in college education cost. An educational scholarship for children of a disabled military parent. 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